Am I the only one that falls asleep during an MRI?
Not kidding about that one. I don’t know if it is because you have to be perfectly still and I have to focus extra have on my breathing, or the fact that the last few have had me laying face down, but I fall asleep every time now.
Anyhow, that was my MRI to see what, if anything, is left of the tumors in my breast. I am hoping both were obliterated by the chemo. I get my results next Monday.
In the meantime I am dealing with the aftermath of decadron. I was weened off, and am still having terrible withdraws. My body has not yet started producing its’ own steroids, and the swelling and pain in every joint in my body is excruciating. I also feel like I am getting sick, but am not actually getting sick. These are apparently normal symptoms. I feel like I am 115. I am taking the same tramadol I have been taking for pain since I started chemo, but it does nothing. I have emailed my ONC to see if I can take Tylenol or something for the inflammation. Hopefully she will get back to me tomorrow. Had I known about this, I would have refused it. It was prescribed for my hand-foot syndrome. I am not sure it ever helped it. I am still swollen like a freaking tick too. That will last for a few more weeks apparently. It is oh-so attractive. I can tell you I will never take any steroid for any reason ever again. I advise you to try any and everything before allowing your doctor to give it to you for any reason.
On to some good news- my hair is trying to come in! The initial while peachfuzz has arrived- you have to look really close to see it:
This falls out- and I actually shaved it a I was getting new henna (pics later) and some other stubble was coming in. That will all fall out too before any real hair growth happens, but all the hair I don’t want has started coming back in (of course.) They say your eyelashes and brows are the last to start regrowing, so I’ll know for sure the chemo has left the building once they come back in.
Also- my body has started producing mucus again! YAY! (see TMI PSA for a refresher if you need it.) Just in time for all the molds to be high, but that is okay with me!
John has returned from his trip to visit his family and pick up a bunch of stuff. He flew up and then he and his best friend Wes drove back in a moving truck. They started in Illinois where his dad’s side of the family is, stopped in Missouri to see his mom’s side of the family, then drove all the way back here on Sunday. I missed him terribly while he was gone. I did however get a ton of things cleaned up. Since he was bringing some tools back with him, I cleaned up the woodshop and organized it as best I could. I worked my behind off for sure and think it turned out nicely.
Still waiting on word for my surgery date. Apparently the scheduler for the BS did not call the PS office as she said she would. So I called the PS office last Wed. and asked about it, was told- oh dear- she is booked till Nov 14th- way past my done-with-chemo window. But she talked to the PS and she is willing to move some things around and that she was going to talk to the BS scheduler to find a day they could both do. I was supposed to get a call by the end of business today. Guess what didn’t happen. I am feeling a bit less confident in both offices in general. If they can’t get something as simple as a schedule together, then how will everything else go? I admit- I am freaking the fuck out right now.
Also, my parents may be coming up in a couple of weeks to bring a few things instead of waiting for when my surgery is. I am trying to not freak out. I had all my cleaning planned out through the 20th of October so I wold be all prepped for any visitors and for my surgery. Now I need to move my schedule up a bit.
As my friend Bob would say WoooooooSaaaaaaaaahhhhhh. 🙂 Gotta keep myself calm- I have too much to do and I know that I am creating more stress for myself, but you have to understand that my parents have an immaculate home. All the time. I’ve never mastered that.
But you know what? I am grateful I have a home to be worried about cleaning. And grateful my parents are alive and want to come spend time with me. So, I will remember that every time I start to stress out over the next few weeks.
Tryin’ to keep my perspective in check..
xoxoxo
jeni
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