I’m sleeved out!

Compression sleeves, that is.

Today I went to get my rx for them filled. They only had beige, and they did not have the gauntlets in the size I needed, so I will need to wait for those. They also hadn’t heard back from my insurance yet, so I had to pay for them out of pocket. Hopefully it is covered and I will be getting a check back from them for the cost. They were NOT cheap. And considering that with luck and hard work on my part I will be losing weight, I will be needing to replace them every 3-4 months instead of the average 8. That is sucky. Also, thinking that I have to get them every 8 months or so for the rest of my life, with or without insurance, the $$ they make off of these things is ridiculous. They are basically heavy pantyhose. It can’t cost that much t manufacture these things. Anyhow- the next set I get are going to at least be a pretty color. I have even seen some that are patterned.  We’ll see what they can offer when I go get my gauntlets. They will defenately take time to get used to wearing. having your hands and arms squeezed all day is weird. And you have to wash them every day. I am not really sure I will wear them unless I am exercising or working in the yard or on the house. Typing really doesn’t pose much of a lymphadema risk, and there are ongoing debates about whether wearing them without symptoms or while not straining your arms might actually cause you to get LE.  You would think that after so many decades of “modern” medicine, they would have this figured out.

This also may interfere with me actually getting sleeved out. I am very, very unhappy about this. My plan was to be covered head to toe by the time I turn 70. I suppose I need to wait to get my recon and think about what I want for my “boobs” first. There are a lot of great mastectomy tattoos out there. For my sleeves I wanted to do all my favorite spacecrafts, then have that blend into my shoulders- windbars for clouds, then wash down into my existing, yet unfinished back piece. My chest has my Day of the Dead skulls and folk sacred heart, and I wanted to put marigolds behind that,   but cannot decide what should go on my reformed breasts when they arrive, or down the rest of my torso to the belt that will be needed to cover the very large scar that will be left from my surgery. AND I have to start putting cash away for all this and the pain meds I will need to be on to get all this done!  My buttocks and legs, pretty sure I may want to go with traditional Japanese images.  If it wouldn’t make me feel like a super a-hole I would set up a fundraiser acct for it all. I just need to work harder and do overtime and find a way to make cash on the side. But there are just too many people that have real money needs,  like the following:

Carlin has been fighting hard. If you can skip your latte today to send it her way- that would rule https://fundrazr.com/campaigns/3Zk32 

Florence has severe auto-immune issues and her RX is insane. Skip tomorrow’s latte and send that cash to her http://www.gofundme.com/6aaqsw

That is about 1200 calories in 2 days that will go towards slimming you down and keeping all of you alive longer! woohoo!

Speaking of slimming down, I am still slacking on the treadmill. This tamoxifen fatigue is just beating me into the ground. I am standing more at my desk every day, and trying to make sure that on my lunch break that I am doing housework for at least 45 minutes, but the mornings, and after work- I just am in bed. Hoping that the low dose/every 4 days effexor kicks in soon to help with that, the night sweats and hot flashes, as well as the crying. So much crying. My eyeballs are tired. I have got to get on there and just walk- 30 minutes a day is all I need, but getting there is strangely difficult. Fingers crossed that the fatigue and joint pain dissipate quickly. I have a lot of events this year, and really want to regain my strength and some self confidence. I have zero of either right now.

This has been a busy month, and next month will be even busier. I am happy about that though as most of it is socializing. Going to visit my BFF, Brettany, the P-units, going to start to learn how to knit! Redo John’s office, organize all my crafting things, sew my curtains (this will be my first attempt at sewing after developing the neuropathy, which is better, but still very much there.) I will be wearing thimbles on every finger.

I also need to remember to buy lotto tickets when I go to the store. That is about as much gambling as I will ever do, but you just never know. You can’t win if you don’t play, and if I could just get enough to pay off bills, maybe the house- that is really all I need. That way I could go part time or something. Dreaming big here!

My hair is coming in nicely- it is  curly! I really hope it stays that way. I am not going to cut it for a year. I don’t want to cut any of the curl away! Right now it is still too short to style in any way. I look like a bad 80’s version of a middle schooler with a Jewfro. I can’t wait till it is a few inches longer and I can really make it big and round! people that are lucky enough to have naturally curly or kinky hair never love it- but I have always wanted a ginormous afro. I can count it as the  One good thing out of getting cancer- if it sticks around. Seriously, I would LOVE to have hair like Chaka Kahn or Diana Ross. HUGE!

Well, it is 3am-I should  TRY to get some sleep. .

love you all! stay warm and off the roads if they ice over!

 


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